Many of you know that I’ve been sick for several years, this is an update. The news is not good news, so please understand that this may sound angry, which is simply because… I am angry. I also include the medical plan, and the
So much preparation and thought goes into your child when you have a child with special needs but it is well worth the effort. I feel that my children are better off with all the support and professional advice that we have received and continue to receive and apply as a result of their respective diagnoses than they would have been if they were any other child because it has forced me to be a more informed and conscious parent. Any of the things that I do with my boys are applicable to any other child for supporting, encouraging and helping them be the best that they can be (with vulnerabilities that they are not ashamed of).
The best advice I can give is to recommend that you make sure you understand how any particular treatment is meant to work. If a treatment doesn’t make sense, sounds like a fad diet or sounds too good to be true, ask for clarification and evidence of it's effectiveness and don’t be afraid to do some research on it yourself. Don't sign up to or pay for anything until you have looked into it further.
My teenage cousin Lucy (not her real name) randomly said to me one day “I think you are more affected by autism than me.” Her socially inappropriate remark made me want to laugh. My immediate unconsidered thought was that Lucy was definitely more autistic than I was….
I will admit, that I am quite fond of Emelie. Her book has inspired both me and Cassius. So it is possible that I am not the best person to respond to this post, but reading the post brought up all my feelings of helplessness and frustration that I experienced over the past school year with Cassius: watching him be bullied, and not be protected by the school that was supposed to protect him. Reading that another child was experiencing something similar just absolutely breaks my heart. This is our letter to Emelie.