Autism Resources for
Parents Anyone Affected by Autism
We live in a crazy world. Thirty or forty years ago a diagnosis of Autism Spectrum Disorder was practically unheard of: now today it seems to be everywhere. There is an overwhelming amount of information on the web, and it can be tricky – impossible even – to sift through all the information and determined what is good data and what isn’t. Attached is a list of the resources I visit frequently. Granted, many organizations have a viewpoint of Autism that I don’t particularly share or appreciate, however others might, so I will list those resources as well. If you need any specific guidance on information and/or specific resources, please do not hesitate to contact us.
- Centers for Disease Control and Prevention – Autism Information Center:
A comprehensive resource with autism facts; dfinitions; data dn statistics; information about screening and diagnosis, treatment, and research; downloadable materials; and links to a number of useful websites.
- National Dissemination Center for Children and Youth with Disabilities (NICHCY)
A central source of information on disabilities in infants, toddlers, children, and youth; special education legislation; No Child Left Behind as it relates to children with disabilities; and reseach-based information on effectived educational practices.
- The National Institute of Child Health and Human Development
One of several Institutes doing research into various aspects of autism, including cuases, prevalence, and treatments. The site provides easy access to the most current information about NICHD research projects, publications, news releases, and activities related to autism.
- National Institutes of Health – Autism Spectrum Disorders (Pervasive Developmental Disorders)
This site contains general information on autism spectrum disorders as well as information on current research into the causes and treatments.
General Autism Resources and Information
- American Academy of Pediatrics (AAP): Autism
A national organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. The AAP website provides a wide range of support, from general information related to child health to specific guidelines and resources for autism.
- Association for Behavior Analysis International
Primary professional organization for members interested in the philosophy, science, application, and teaching of behavior analysis. The ABAI website includes a useful set of guidelines for determining qualified ABA providers for individuals with autism.
- Autism Society of America
The Autism Society promotes community involvement of individuals with autism spectrum disorders through education, advocacy, and public awareness campaigns. The ASA website lists state and local chapters, provides resources for parents and teachers, includes information about autism legislation, and answers frequently asked questions from parents about autism spectrum disorders.
- Autism Speaks
Autism Speaks funds global biomedical research into the causes, prevention, treatments and cure for autism. This website provides general information about autism, research and resources for support and offers some resources for parents and teachers.
- Cambridge Center for Behavioral Studies
This internationally-recognized resource for quality information about behavior, including scientifically validated information about the causes of autism and the Applied Behavior Analysis (ABA) approach to treating it.
- First Signs
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism. Its website is another excellent resource for parents of children with autism or those interested in learning more about early childhood development.
- The National Autism Center
The National Autism Center (NAC) is a non-profit organization that provides reliable information and offers resources for people affected by autism spectrum disorders. The NAC supports evidence-based treatment approaches and shares the results with families. In 2009, NAC completed and published the National Standards Project, which evaluated and categorized autism interventions and therapies.
- Organization for Autism Research
OAR funds research and provides information that focuses on teh challenges for those living with autism. The website offers information for parents of children with autism, family members, educators, and service providers. It also has information about research studies OAR funds and a directory of research centers across the U.S. OAR’s resources include publications in the Life Journey through Autism series; The OARacle, a free monthly e-newletter, and Operation Autism, a website specifically for military families impacted by autism.
- Sibling Support Project
A national effort dedicated to the interests of over six million brothers and sisters of people with special health, mental health, and developmental needs. The Sibling Support Project offers reading lists, children’s books, information on local workshops and sibling group meetings, online resources and listservs for young and adult siblings to share experiences and issues.
- The Southwest Autism Research and Resource Center (SAARC)
A non-profit, community-based organization dedicated to autism research, education and resources for children and young adults with autism spectrum disorders (ASD’s) and their families. SAARC undertakes self-directed and collaborative research projects, serves as a satellite site for national and international projects, and provides up-to-date inforamation, training and assistance to families and professionals about ASDs. SARRC is piloting telemedicine as a way to provide therapy to families who live in areas that lack high-quality autism services. Military families are encouraged to contact SAARC about participating in the telemedicine project.
Side-note: This list will continue to grow as I add new resources to our growing list. If you have a resource, website, or blog that you would like to recommend I add to my list, please let me know below!